TreatSMA
Blog & News
The latest treatment updates, NICE decisions and community stories, in one place.
Newborn Screening
June 2026
MPs Debate SMA Newborn Screening: England's Rollout Confirmed From October, But Not Yet for Everyone
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Research
June 2026
New Study Finds Evrysdi (Risdiplam) Triggers Cellular Changes Beyond Motor Neurons in Adults with SMA
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EU Approval
July 2026
European Commission Approves Itvisma Gene Therapy for Older Children, Teens and Adults with SMA
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NICE Approval
May 2026
Full approval for Everysdi and Spinraza -YOU DID IT
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NICE
April 2026
NICE prepares to review intrathecal administration of gene therapy for SMA
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newborn screening
April 2026
The voice of clinicians sits behind all the social media and PR hype - thank you
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Newborn screening
April 2026
Newborn Screening for SMA: A Step Forward, But Nowhere Near Enough
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USA
April 2026
High dose Spinraza receives FDA approval
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Mobility
April 2026
Motability limits mobility
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Newborn screening
March 2026
Scotland Leads the Way with Newborn Screening for Spinal Muscular Atrophy
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NICE Review
March 2026
NICE Decision Delay
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Newborn Screening
January 2026
England newborn screening proposal submitted to UK NSC
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US FDA Approval
November 2025
Itvisma receives FDA approval in the United States
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NICE Review
November 2025
NICE committee meets on Spinraza and Evrysdi
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Research
October 2025
DEVOTE study: higher-dose Spinraza data
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Research
September 2025